www.BrettDaniel.com

Cancer Number Four

Is there such a thing as chronic bone cancer? If there is, then I have it. A routine checkup last week found metastatic bone cancer tumors in both of my lungs. An extensive battery of additional tests confirmed that a minor pain in my right thigh is caused by another tumor. It is unclear whether these occurrences are related to last year's diagnosis. I also don't know yet what the exact treatment will be.

I wish I were a more skillful writer so I could better express how deeply frustrating and discouraging it was to learn I have cancer for a fourth time. Having passed my qual, this semester was supposed to be the first that I could devote solely to research; now I will have to split it between research and cancer treatments. After going to the gym nearly every other day since mid-February, I had finally passed last summer's best bench press; now vicious chemotherapy drugs will knock back any gains I made. An unlucky combination of genes has eaten away at my legs for the past eight years and now it has decided to go after my lungs.

All this came as a complete surprise. Unlike my previous diagnoses, I didn't have an enormous lump or stabbing pain anywhere. The only indication that something was wrong was a slight soreness in my right leg. Random aches are normal with that leg, but a spot near my hip had been bothering me since I bruised it while rock climbing. I drove to Indianapolis for my standard every-three-months-post-cancer checkup, hoping to get confirmation that the pain was harmless and expecting to return to Champaign by lunchtime.

I got several x-rays of the leg and my chest. After the scans, my surgeon very directly stated that the chest x-ray looked abnormal.

Chest x-ray.  The doctors say they can see several tumors in this picture, but I have to take their word for it.

I didn't get back to Champaign. In the week since that initial x-ray, I have had a litany of additional scans. First, my surgeon ordered a CT scan of my chest and an MRI of my hip. Then, my oncologist ordered a full-body PET scan—my first—for Friday and a bone scan on Monday. Today I had another MRI of my leg, slightly lower than the previous one to better show the tumor.

Unlike my previous diagnoses, I was able to keep CDs of images for nearly all of the scans. The PET scan was particularly interesting. It is used to gauge metabolic activity. I was given an injection of radioactive sugar and told to lie still in a dark room. The important thing was to keep nonessential metabolic processes to a minimum. No movement (and no thinking) for two hours. I fell asleep, which I am told was probably the best thing to do. Then, I was taken to another dark room with the scanner. The tumors showed up as small bright blobs in the resulting images.

PET scan showing a tumor in my right lung.  The crescent-shaped bright spot is my heart. PET scan showing several small tumors in both lungs PET scan showing a tumor at the back of my right lung

The bone scan shows bone growth. The leg tumor appeared, but the lung tumors were hidden.

Bone scan from the front. One can see the bright spot caused by the tumor in the top half of my right femur. Bone scan from the back

The MRI showed the position of the leg tumor at the top of the femur. It is difficult to see much detail because all the metal in my leg interferes with the scan.

MRI of my right thigh showing the tumor at the top left

Lung tumors are undoubtedly a Very Bad Thing, and with my history, treatment will be a challenge. Fortunately, there are medicines and techniques available that did not exist just five years ago. I will write about the particulars once the plan solidifies.

I greatly value the love, support, and kind wishes that so many have sent. Thank you all.

7 Comments

Alejandro Gutierrez Says:

Hang in there! You are truly an example to follow: a great person with lots of human values; great researcher; an extremely funny creative artist: and on top of all a great friend Brett. You know you can count on me for anything. I will always offer you an extra shoulder to lean on when you need to get some strength to continue this fight! I am there for you Brett. Take care, and carpe diem!

Dan Says:

Hey Brett

We’ve never met, but I’ve been reading your blog for a few months. I enjoyed it so much I started my own. You’re quite the role model, so do me a favor and punch that cancer in the face.

Oh, and I assure you my blog’s name is purely coincidental.

Matt Ronge Says:

Hey Brett,

I’m sorry to hear you have cancer again. You’re a great guy, and as the others have said an example to follow. I also know your a tough guy, someone who will push right on through this treatment. So here’s to getting better soon! If you ever need anything, don’t hesitate to give me a shout.

martini kalb 2nd cousin Says:

Hey, Brett I’ve been keeping up with what’s going on through your grandmother. I know that you are a fighter, and are so right about treatments that they didn’t even have five years ago. I was and am on Avastin, that drug was not FDA approved for breast cancer until last February. It had been approved for other cancers but not breast cancer. As you know, once it is breast cancer it will always be breast cancer, once bone caner always bone cancer. I contacted my Senator and was truly surprised the quickness in which they contacted me via a written letter and e-mail stating their input with the FDA. The Avastin worked very well for me and shrunk the tumors in my chest to where everything was stable. Now the ugly monster has appeared in my liver, I’m on a regiment of Gemzar(sp) and Avastin. Keep fighting the fight.
Marty (2nd cousin)

Macneil Says:

Hi Brett, I am so sorry to hear about this latest cancer. You are in our thoughts and prayers.

Erik Hinterbichler Says:

Hey Brett,

I just learned about this and I wanted to throw in my encouragement as well. I read through your whole blog and I’m really impressed with how positive you are, and that’s why I know you’ll beat this cancer down no matter how many times it tries to come back. Keep fighting! You’ll get that bench press back up in no time :)

Erik

Qingbo Zhu Says:

Hey Brett,

I am so sorry you have to go through this again. You did a terrific job during this summer. All folks at San Jose (Pattern Insight) really like you and are looking forward to your visiting here. Keep fight and I am sure you will beat it down once and forever. Do pay a visit sometime here when you get your chance.

Bo

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